Hi Sandy! I just wanted to let you know that I'm Carol and I write this blog. I'm the grandmother of two boys with HCM and their father lives with us. He is waiting for a heart transplant. I'm so sorry to hear about your situation. I'd like to recommend that you visit the HCMA website at www.hcma.org. There you can get hold of Lisa Salberg and other great resources! Best of luck to you !